Medical Research/Eating Disorders
Posted 27 October 2002 - 10:25 AM
If you are interested in participating in this study, or in more information, you can call 1-800-273-1304 or visit MyBoneHealth.com.
I have no connection with this study, but the researchers have asked that word about it be spread in the community.
Posted 27 October 2002 - 11:08 AM
Posted 27 October 2002 - 12:00 PM
Just checked on the ad...it has a different number...1-800-753-5391 and the site is GirlsBoneHealth.com. Is it just coincidence that there are two of these going on or are their two different contact numbers? :confused:
Posted 27 October 2002 - 02:29 PM
Posted 27 October 2002 - 07:41 PM
The director of the study came to the ballet school through a ballet teacher at the college who had guest taught at the school on occasions in the past. We parents were all invited to a meeting and given detailed written data on the study. Because it was arranged through someone we knew and trusted, many of us were willing to let our daughters participate.
(The 12 year old ballet dancers and gymnasts were far stronger than the female college athletes).
Posted 27 October 2002 - 08:18 PM
I don't have a huge problem with recruiting participants this way, from the standpoint of the study's validity. It's actually a pretty effective way of recruiting large numbers of patients, and it COULD have the additional virtue of alerting some girls -- and their parents -- to a potential problem. As Major Mel points out, though, a girl/family should not enter into this study without the guidance of the family physician. He/she can help evaluate the qualifications of the investigators, the design of the study, and the potential good or harm to be reaped from receiving -- or not receiving -- the medication being studied.
ALL clinical trials of medications are sponsored by the manufacturer. In order to get FDA approval, the manufacturer has to demonstrate the treatment's safety and effectiveness. They are only allowed to do so after initial studies, usually in animals, suggest both safety and the promise of effectiveness.
Posted 28 October 2002 - 06:04 AM
I should repeat, as I did in my orginal post, that I am not associated with the study, in fact not even participating. Nobody is "recruiting" on the internet. I was simply posting information I saw in an ad in the relatively legitimate New York Times. The illustration was not wierd in any way, just a mom & adughter if I recall correctly. (I'd be a lousy focus group participant.)
I know people have concerns about these issues, and should. Sometimes people are looking for resources. It's true that such studies are highly regulated and peer-reviewed, though they are necessarily experimental in anture (obviously!) and the process can be flawed, just like a too-early transition to pointe. No one, least of all me, is pressuring anyone to become involved: the purpose of the site & 800 number is exactly to do what Ballet Master suggests: provide accurate information on participation in the study to interested people. If that's not you, no harm done, I trust.
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